Acid Reflux Cool Whip

half four in Germany .... on this early Friday
I sigh to myself, because this stupid computer clock appears to be broken, because it has been moving felt not 10 minutes from the spot. 1 hours then hour "zero" - the word comes out again ... God knows. They are back this beautiful Finding words, if the pile of debris (also known as my friends) sit together. My girlfriend is SuperSu prefer Firellenfolets always cheerful and shares that "it can have a belief" of how the taste is phanatsisch. Well, yes. It is fish, so I can "abdenken to 5 fingers" to me how it tastes. If you think that there is something wrong in these sentences. Which is most likely correct. But what the heck is the ruins language that no one needs to understand. Everyone who does it but was ....! gelidlt Incidentally, I find saugeil the word - well, I know the origin and background.
So after another 10 minutes it felt still half past three ...
The day annoys me the Clock annoys me. I can not decide if I want some now work or play on a particular page Packman or if I put my head on the table and keep a little nap. For I am sitting alone in the office. Moreover, this is not always a privilege, but it more of a curse. Especially for those to whom I count myself also like to keep one or the other chat.
Well, back to the waiting for an hour .. then it goes to my opinion well-deserved long weekend. But no! That reminds me of but a sudden that I'm actually a poor pig. Nix is with a long Weekend. Do it is again. Friday, Saturday and Sunday. Hm, maybe I'll even by rich but still. They say: From rags to riches. Then it would have the waitress to billionaire but go.
Anyway, I'm trying out every weekend. Let's see, maybe I'm doing something wrong. And already I have another flash of inspiration .... was it not for a raise in the room? Sometimes called the Cheffe ... oh no, have indeed fixed WEEKLY Jour. Since he is nailed directly times.
Well, the dream of more money - no salary increase for long-term protection against the economic crisis. Well, now that each refuse to answer on those grounds can. Where can I complain not know I have a job and I'm not unemployed are in danger - unless I play Packman. :-)
Well, I'll have to go wait tables. Is not bad, open hair look, and loving, then roll the tip.
irritated-A new look at the computer clock, which seems to have actually broken, because it is just 3 minutes later from just. Oh man, if it continues like waiting on ceremony evening even worse than waiting on the baby Jesus ....

Presidian Turntable Radioshack

12 months after the diagnosis

.... 1 year ago yesterday we received the devastating diagnosis .....

.... after 85 diary entries, countless hours in the hospital, 1000den swallowed pills,
yesterday was the big day 180 investigation.

6 months after transplantation were routinely carried out lots of tests. The findings on bone marrow biopsy 2 weeks ago were discussed and are promising. Nearly 100% donor cells, so virtually no "old" blood cells more. Although some special blood cells develop a little slow, but that is not worrying.
Philip must now only because of infections still more cautious, though his body is already 15 years old, but it corresponds to the sensitivity and the immune system just that of a 6 month old baby. The immune system will catch up but hopefully in a high speed in the next 12 months and much to protect him in 2010 age-appropriate.

Now Philip has not tolerate a variety of fresh fruits, do not protect in the sun, it is also against excessive heat, because the whole-body irradiation of last September is now in the heat, the risk of brain swelling.
But those are only minor restrictions, compared to what lies behind us.

By now increasingly rare hospital visits, we note how quickly the unpleasant things in mind. On many we can not errinnern. Even went for walks in the Spiatl us countless times, we had yesterday and thinking about how we get from A to B.

also again as a practical protection mechanism of the body to forget unpleasant quickly. I even happens that this time is faster with forgetting than 8 years ago during the initial disease. Many of the extreme hygiene measures, I would describe today is not more even though we have used it for several weeks several times a day.


As each day brings the family closer to rehab. On 1 April is so far, then it goes for 4 weeks for the whole family to rehab at St. Catherine's height. We can not have almost merh finally expect the batteries to recharge, build stamina and get fit again.

Until then, however, still a lot to do. A check-up for the Kid's in our Hausärtzin in order to ensure that we bring any contagious diseases.
effective vaccination for some childhood diseases for Philipp end of March, as written, must make up for all children Philipp vaccinations.
And a routine check-up at St. Anna is also the end of March in the program.


On the very day after 12 months dissolves at me kind of a heavy load. Phil has managed to therapy.
an interesting feeling in my stomach, if now fly the idea in recent months by the head and mingle with the emotions 12 months ago.
come true yet some control tests, and possibly also one or two other long-term side effects, but the main disease, leukemia, is defeated. The doctors were all diagnoses and successful change of direction in therapy. Philip was brave and grown by the situation, and we as parents have become strong. Somehow you proud of something you have not chosen, and the one actually not at all proud want to be, because there were many bad things but that had to do and we learn. At the same time I am
grateful for the sensational team at St. Anna, even if sometimes the communication is between the different areas not quite as smooth, which is certainly partly due to the tense situation. There were all really great, the ÄrtzInnen, the nurses and orderlies, the psychosocial team, to cleaning and the transport of patients, thanks to you all.
Thanks also to all who have so often thought to me and fingers crossed.
Thanks to our superiors, who have made very generous to our situation into consideration. Thanks to our
Family
Thanks to the team of children with cancer and
Thanks to the friends I have now not given separately.
Without this uncanny cohesion and this "backing" we could not have done.



makes meantime Philip enormous progress in the IT sector. Today he has
fifth the seven tests on the way to the ICDL - Computer Driving stored. On Tuesday, 31.3. just before the departure to St. Catherine's height, he is still invited to a ceremony in the town hall.

Sensational, what Phil has done next to all the medical unpleasant things in the past 12 months.

And above all the humor he has survived. This gives us all strength and courage.
Unlike many young people he is fully motivated gone by the time of treatment, always keep the goal in mind, in a few months, I am healthy. And it is confirmed when you look at the objectives formulated positive picturing in my head, then they can later become a reality.

do hope that these lines all the courage, a transplant have yet to come or go a different hard way.

It's all create when we firmly believe.

LG
Markus

What Color Curtains Go With Cherry Wood

about day 180 Thursday, 02/26/2009

Hurraaaaaa, again made a big step.

was finally removed today the venous catheter. Was not that easy but that Way to this place.

The last few weeks in fast motion:

Before There Were Two weeks back a share. Philip must again (almost) everything. So even eat sushi and fresh sliced sausage and kebabs, etc.. Of course, everything should still be fresh, but also nuts and poppy seeds are allowed again. Ahhhh finally allowed to eat everything again. Wonderful.

is also usually out of hang gliding, motorcycling and public. Baths again everything is permitted. Full great. Also, U-train travel is allowed for 2 weeks. Sounds strange, but after such a long abstinence something special.

Great care needs to the sun. His immune system and its protective mechanisms correspond to day 180 that of a 6 month old baby. So no sun or strong sun protection. He is now getting all the vaccinations again, like a newborn for or against all childhood diseases, etc.. The first dose was there in late January, the second next week.


So, for today and so was the planned surgery date, coinciding with the day 180 bone marrow biopsy to check out is also equal to the catheter. First, we were ordered
clock for 9:00, but received a call yesterday and should have come earlier.
Then the last blood sample from the catheter, but the same tidy.
14 tubes for all possible and impossible tests.
Right after moving into a room on the ward 3B, the playful surgical gown and wait briefly. The prognosis of a doctor and nurse that Philip soon turn comes, and go about 1.5 to 2 hours back home can. We look forward to.
Then the sobering message that the ESR does not fit. The reason may be the blood of catheters, so Venflon translated - iiiihhhh after 11 months back, a needle - and wait another 1 hour. Nix to quickly return home.
There have, however, all efforts so that no additional sober waiting all too long. Thanks to the team, from doctor lab. :-) At 10:30

fits clock finally the release, blood counts, into the operating room.
After about 45 minutes, Philip back in the room, still has a bit of dozing. The "correct" him anesthesia was much more pleasant than the usual short-sedation. He also has recovered a lot faster. Already at 12:30, he was fully fit again, but before he could go home, he still had some body functions to the test. eat clear anyway, then a little bit - -
So first a bit of drinking, without break without breaking, then pee. Only then another doctor came to the final inspection and then finally out to about 14:30 clock from the hospital.

now in the evening a bit of pulling and a bit of pain, but do not hang Katheterpommeln everything from the chest. Only one patch and take a shower in 1 week and swim back to normal. After nearly 11 months of almost unimaginable.

We have now learned that such a catheter but lasts long, but often does after a few months, problems, or something ignites. It is not uncommon for it to be renewed during therapy must be 1 or 2 times. Whew
because we were lucky, Philip had him since April 2008 without problems.

So much for medical health, all right. On 10 March - so coincidentally the day exactly 12 months after diagnosis - follow the usual day 180 investigations. We expect a day of action in the hospital, the EEG, the ECG, echo in my heart, for MRD, and so on. We have ash on us.


Since mid-January, Philip tried very hard to regularly attend school. With the semester break, the home schooling has been reduced to almost zero.
It makes it fun and pursue it in the "normal" school day also good. The contact to the classroom community is never really torn, so there was no Proleme with the re-integration.
However, he charged the school work stress. Philippe is technically good, but he always gets a day before a school work so wicked Bausch Merzen associated with diarrhea, that any activity is impossible. Although we all try to print out including Philip increase, does not the head or the body really with. As we have learned today is not unusual for such a year of treatment. So we will switch back to a passage, perhaps even insert a weekday with home schooling and curb the ambition of all of us a bit.

Na is yes and yes then there is only 1 month until the family to St. Catherine's Rehabilitation height. The anticipation builds with each day. This is probably because our batteries are empty and we are increasingly looking for relaxation.
for us parents have the reserves used up and consumed energy.


now there is already a long diary entry but we have to report something important. February is the month of birthdays for us. First, Marie-Therese celebrated her thirteenth birthday, it was Mama drann, they can turn the old business, now and as they want, the numbers produce always the same number would not reveal more.
And this week Tuesday, had his 15th Philipp. The gruesome 14th Age is over. Philip had but even stated that it's actually gone by quickly. We had just the mega-birthday party in February 2008 and again a year. This time, however, we are all glad it is over.

So now I've had enough written
passes until the next time
All the best Mark