First it is different, as you think.
But first, the events this week in order.
This past weekend we all enjoyed. We have picked up Phil at 10:00 clock in the morning, and he first had to be back at 20:00 clock in the hospital.
It was super great. We played cards, are lurking just relaxing and have enjoyed the day. Philip takes 2-3 hours to lunch for his beauty sleep. The rest of the time he is fit and funny on it. On Sunday we learned
this situation, the whole week will be above TOR. ;-)
The first day in the evening but Philip is glad to get back to the hospital. Since the day he infusions without enough liquid increases, he feels the lack of fluid in the evening.
As of Tuesday evening, he might understandably not even the hospital.
Since the whole-body irradiation, however, several internal organs were damaged, need for regeneration of the body and are flushed properly, especially of the proposed mid-passion kidneys. Therefore, Philipp drink at least 2 liters a day.
does not sound much but is very beschwehrlich if you have absolutely no appetite and the taste buds are all confused. The production of saliva works well not really. Everything tastes different somehow, some grisly, some things differently than you have it in blush, some burning in the mouth, much tastes like nothing.
On Wednesday we had a termination (dismissal) Interview with the ärtzlichen team. If Philip to Friday drinks at least 2 liters, then he can sleep at home, that is, Dates of release. :-))
Big goals, because Philip provides just a brief liter, and of which he breaks out again a part, which really should not be included.
The conversation is uniformly very positive. It has grown all the new stem cells, and are developing very well.
The "new" blood production works very well. Of his total blood content in 2100 new cells, only 50 of his old blood cells are present. This is really great and glittering internationally very successful.
Additionally, only in Vienna, also with a very specific measurement compared with just these 50 white blood cells with the same types of new white blood cells. This is now at the various Chromosomes visible. In this particular measurement are still 70% old cells that want to exterminate the doctors now have to really go on the safe side. The immune-blockers is reduced to attenuate the nine cells to be aggressive and not zusehr. This could also result in a stronger GvHD.
On Wednesday we went to for a teacher, physio and Arztgespröch at 15:00 clock home, but instead were allowed to stay until 21:00 clock.
Philip was very tired and has slept through most of the starting time at home.
Although he at home with the lift in front of the apartment door to the garage to the car drives, and in after 15 minutes steps Hospital's, it is mostly from the transport so exhausted that he has to throw up.
On Wednesday evening he is quite at home played out and a little body temperature rises just above 38th
On Thursday, he sleeps in the hospital longer, so the teacher can only later to him. Before starting he would still need to cardiac echo and ECG because because of the great listlessness may suspect something at heart and ensure that everything is ok.
shows the morning then the real reason for the fatigue, he has diarrhea. This could now be GvHD, or a virus, or something else because he spent recent days against the constipation swallow a lot of stuff had to Darmbeschleunigendes. However, the fever would rather point to a virus, but because of the immune blocker was reduced (70% to eradicate the old WBC), it could be GVHD.
So today no exit, back to bed and to the infusion docked for irrigation.
And it looks like even on Friday, no home sleeper.
The good news for the day, however, that in the next specific measure last Monday, only 40% old WBC were present. The trend fits. ;-)
Even today's cardiac examination revealed a unaffälliges result.
On Thursday evening Philip was again significantly better mood than even for lunch. He had no abdominal pain and felt better. In the evening, he stows away even with large appetite, a small piece of fish and two Petersillkartoffel. Very highly spiced with fresh herbs and almost salty, but it it tasted good.
Hopefully it is now a small step forward again and there is now nothing in between, then it's the beginning of next week for a long time to go home.
1x weekly checks are first provided in the outpatient clinic.
On day 60 another bone marrow biopsy and then probably only every 2 weeks for control.
And on day 100, there is then only the latest of bone marrow and if by then everything will fit in the course of which the venous catheter back out. That would be sometime in mid-December, so for Christmas at home without the hassle Schläuchelwerk at the breast. ;-) Those are fine goals, right? And Phil could then schedule the time to start again from a "normal" life in the society to go back to school, go back normally to the cinema or in any restaurant. But until he is really fully fit again, everything can and should be eating it but still take 6-12 months.
0 comments:
Post a Comment