Congratulations Messages Be A Mother

:-I Day 27 Monday, 29/09/2008

The WBC slow uphill climb.
Fri 1370 Sat 1320

1280 Sun Mon
1500
On Friday, Philip onkoeigenen in the gym, one floor down.
had when returning it with the physiotherapist Problems access system.
No key, no card so no entrance fee. Only one other doctor has unlocked using a key switch for the lift station 1A. The intensive training had
Philipp weekend a mega sore and did not want to get out of the room. Instead, he has until midnight Looked remote.

Today, Monday, it was not so good. The circuit has played a trick. Philip was tired, had headaches and nausea and has slept a lot. The always too high blood pressure today was suddenly much too low.

increases the number of slow-to-swallow tablets. Good sign, we interpret this as the initial preparations to go home.

The symptoms of GVHD are less again, so has remained Phil saves the skin biopsy last week.

morning there is a bone marrow biopsy to verify the activities of the many new stem cells.

Ritetemp Thermostat Screen Does Not Response

:-) Day 23, Thursday, 09/25/2008

The WBC stabilize.
1020-930-1020 - now exactly 1000
The other blood values toil a little, the HB was now so low that another Erykonzentrat was necessary. But this corresponds to the protocol itself and is no cause for concern.

The doctors and nurse team is excited as Phil goes through the therapy. There were already happening here some 100 transplants, but as Determined and confident of victory, with so much ambition and courage is still no young maschiert through these difficult weeks.
Philip feels right flattered and enjoys the same time the new-found freedoms. ;-)
Today he has his lunch first time cooked himself. There was turkey breast with potato. Although he has not eaten much but this is quite normal, after the taste buds must re new form. There

infusions and irrigation it only in the afternoon and at night. In the morning, he tries to drink hard working, but this is still a little hard. Today there were at least already 400ml. If he manages 2.5 liters, he must go home, if not the motivation.

clear that such a tired trip in the station kitchen, makes sense now to ordinary Philipp sore muscles, he is glad to be watered again, even as some infusions are the him in the morning felt were missing. The lack of morphine will be very angry and nothing fits one.

But gradually he weaned himself from the "artificial" supply and is making good progress.
:-)

In the shower, there are already facilities. Only 2 washcloths instead of 5, and Philip may again with shower Nivea shower instead Betaisadona.

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:-(

Today is a sad day
The hare, Flecki died by Marie-Therese.
We have him in the evening found in the bushes and quickly organized a very moving funeral of a Protestant pastor in our magical forest.

Philipp it goes well so far, today he was for 30 minutes on the road course and then pretty much exhausted. The WBC fall, now it was only 930th But (still) no cause for alarm. For us in healthy people vary Leukos always a little bit.

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:-))))) day twenty

I can get out

Leukos 1020 at 11:30 and gave it to the first output. Eh clear - übern transition toward the kitchen, because much larger is not the station.
There will always be fine. No more coat care, just more plastic aprons and face masks for the visitors. swallow
No more nutrient solution into the veins for a vitamin tablet to, but I did after 45 minutes again rausgespieben. The whole room added afterwards smelled of vitamins, such as when dissolving a vitamin spray.

The redness of the hands of GVHD is now fixed. If it gets worse, I get cortisone tomorrow and it would be scheduled a biopsy of the skin - but only if worse. Before that, I fear me a little.

Today I received from the SVM-Team at WU a cookbook and a DVD. Thank you. Now I can already get a Guster, but this does not work with food ever so right. If I eat too fast or too much comes right out again.

otherwise we are happy without a word
philipp

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:-) Monday, 09/22/2008) Day 19 Sunday, 9/21/2008

Hooray, it goes uphill

Leukos multiply constantly.
Today, there are already 910 WBC. :-)
Although the other blood values are already a bit confused, yesterday was a necessary and Erykonzentrat Tromos today are already very low. But the overall condition is improving daily.

The pain in neck / throat are still very much already, but it is already the first hunger. Today Phil for the first time and again demanded a steak. The food was painful, the taste of each other, but he was full of happy to eat something real. While not much, but at least some small bit of meat and a piece of potato. Various spices we only weak or no exercise for Phil now totally intense, other he did not taste it. This should return to normal but in the next few weeks.

on the palms Philip has always burning redness that is not yet diagnosed as GvHD can be, but may represent the first signs already. The GVHD is important to see that the new cells work and eat up any remaining cancer cells, but too much should be borne by the effect, because otherwise no other organs too damaged.

goes but it tends to climb. Phil is pleased with the increasing improvement, and may make the initial "baseline" expect little more.

Today was again the grandmother and had to visit again until the whole Hygiene preparations learn. It was a nice afternoon. Once again Phil can speak normally and has no more pain in the mouth, the two have talked a lot.

expected following the quiet weekend Philipp on Monday full program. The teacher comes to physiotherapy has also logged. Philip is mobisisiert slowly and should be fit for his first outputs. That makes a lot of lying tired and worn, but tomorrow will be trained body and lungs.
Tuesday is probably the corridor of the station and if it continues to develop almost the end of weeks he may already be on the roof terrace. And in two weeks, then maybe even just get out of the hospital, once around the block.

Can I Feed Curd To My Puppy?

:-) Day 15 Wednesday, 09/17/2008

Hurra, the WBC will
Since the weekend, they increase daily
110-180 - 240 - 340-444

I'm doing better every day,
and I eat even more
Today I ate almost an entire glass Hipp
course, not the glass but the filling ;-)

The drinking was previously very well
Today I have already 3 Häferln
was drunk on Sunday, however I Urschlechter after half a mug already.
The painkillers will be reduced very slowly.

Otherwise I'm tired but well on it and play with my Ipod

Maybe I should go for a walk Monday or Tuesday already in the corridor and laugh.
laugh I can always, of course. ;-)))
This week I have physical therapy for muscle and strength building.
I hope it goes on uphill

Pain In My Back Left Side At The Waist

:-I Day Eleven: We are still waiting ....

..... Although the condition is improving every day of the oral mucosa, but really is the new blood production is not yet under way.

Phil can talk since yesterday. The mouth is still swollen, but he bravely tried already to start drinking. Throughout the day, he creates already a tea mug and today he has already tried a few spoonfuls of a hip mash.

The measurable blood levels are not higher. Today, the thrombosis have crashed so far, that once a bag was necessary. Despite the really very low platelets, the bleeding in the mouth and throat, but have almost ceased. A good indication that the work Leukos.

The HB is recovered for a time but, all things very slowly, maybe Phil can this low again catch himself.

According to the forecasts and experiences, 2-3 days after the appreciable effects in the mouth, the WBC also measurable present. We have been waiting for day 8, - they could then come on, we would not mind.

repeatedly Philipp allergic reaction. It is not known what, when and why.
on the skin are deep red, hot spots, which and itch severely.
enough sometimes some cream with a mix of a special lotion and benzocaine. For this purpose a Coolpad or even several. Sometimes the reaction is severe, then there a drug into the veins, which makes then very tired. Every touch of the skin is then very unpleasant, including the pajamas and the ceiling.

Because the stomach has apparently forgotten in the last 8 days to run properly, it is often given after Philipp 2 tablespoons Breinahrung again. Although he gets a drug and then however, the situation calmed down quickly, but mostly it is then also very exhausted.

with one or the other reaction and a little nap because of subsequent Exhaustion, the days are relatively fast.

Philipp urtapfer, asked the doctors to reduce the already analgesic dose and really tried everything to get fit again as quickly as possible.

He ordered the physiotherapist and trained on the exercise bike, he will (voluntarily) all Schülbücher here and asked for his teachers to zuverpassen not in school connection. Also for the teachers a pleasing picture, because many children while they are locked up in the clean room space not much want to know from the school. Only when it is really much better off and get the kids out of the room to the Staion they start again with the lessons. Philipp But as ambitious and begins now.

He tries to drink as much as possible, even if he often breaks out again.

He is on the station of the star and is highly praised by the entire team, because such an ambition is very rare. :-)

The next hurdle is less than 1000 WBC, he may face masks out of the room and move out on the station again. That could be about 1 week so far, depending on how long the WBC now still leave time.

The next stage will be at least 2 liters per day drinking, then he may for a short time back home.

From today's perspective would be the earliest in 2-3 Realistic weeks, many of the children were approximately 1 month before transplant, the Philip, in recent days gone home.

First, there is only day a few hours out, then the whole day and only the night in hospital and if it all goes according to plan, then perhaps he should sleep in about 3 weeks and again at home. So dear readers

fixed fingers crossed.

Finally, a summary of the statistics:
were 2 days ago it's exactly 6 months since Phil in therapy
In 2 days we introduced exactly 4 weeks on the 1A station
In 3 days we have 14 days after the transplant.

What Are The Negative Effects Of Eating Flour.

:-I Day Eight: We are waiting .....

The situation is almost unchanged. The discarded Leukos range from 0.19 to 0.07 - 0.13 to 0.10. to suck

To grayish remains from the mouth, Philip has got now a suction hose, you know something like the dentist.
The jaws are pretty swollen, every hour makes Phil's oral hygiene.
Betaisadona then rinse with a Bepanthen solution and then with a special Spültee. Finally auspinseln still with a solution to the mouth.

swallowing is impossible. For several days, Phil is supplied exclusively through the veins of nutrients and minerals.

The HB value (hemoglobin) has now fallen so far that Phil has now received two ERykonzentrate. He was yesterday very tired and sleepy.

is now in the evening after the two did the same blood Ackerln much better. The
Schmerzmittelbypässe are now so well managed that Philip is largely pain free and has almost no allergic reactions at all.

let the bleeding in the mouth for a bit.
This is also equal to the overall feeling noticeably better.

weekend I set up the router staionären Internet access using a WLAN. Now, Phil from the bed with the i-pod read emails and download games.
Since today he has again (something) like to do such as i-pod and remote play shows. Although only a short time, but still. The awakenings are a little longer and manchmel is also a little speech. No complete sentences but at least one or the other word.
So aside from the (still) not measurable existing WBC, the overall condition is improving a bit. ;-)


As I write here in the hospital the diary - it's now about 18:00 clock, say the nurses that are now better in the course of the day the gums already, that's a sign that the WBC has already . work The first fresh produce Leukos go immediately available for the rehabilitation of the oral mucosa. Since they are not measurable but it works already. :-))

on the measurable Leukos have to wait about 10 days, so everything is still on schedule. We now hope to rise a bit properly before the weekend, because on the Monday there is a mega blood counts which also differentiated exactly whether they are old, male or female fresh WBC.

Counteract Iron Itchiness

:-I Day Five: Sunday 7 Sept.08

Things are changing so fast that we do not comply with the letter

I try to summarize the last 4 days or less chronologically.

Marie-Therese was discharged from the hospital on Wednesday afternoon.
She had terrible pain in the pelvic area, could hardly sit and go.
Even pain pills do not work really.
On Thursday, she had all day and night temperature rose to 38.5 degree fever. This was to come back in the hospital as unusual and worrying, so she had to control. To rule out any infections, the doctors would have liked to have had a drop of blood from her, but she would not even let a finger down. Now she takes
a preventive antibiotics 3 times a day. The pain may be after a very slow, they can already "normal" to go, but climbing stairs is still a painful, like sitting or lying.

One of the two injection sites had yesterday (Saturday) not looked quite as good, but slowly grow the two small holes to.

Meanwhile, I have heard of the assistants in the operating room nurses that visible while in the skin only a puncture, but by moving the skin is repeatedly stabbed in various parts of the pelvic bone to the necessary amount of bone marrow taken from. Therefore, the wound pain is understandable.

When Philip has steadily downhill since Wednesday. This corresponds in principle to the protocol designed to but still spectacular.

The WBC have halved every day since last Saturday, 13,000 on Saturday at 7500 on Sunday, up to 250 on Friday. Yesterday (Saturday) it was 0.1 - that is practically zero. Today is Sunday - the first ray of hope them to grow and increase to 0.19. Every Monday we checked in a special process whether it is his old or his new cells. Because our children have different gender one can see the light of the XY chromosomes.

All other blood values but are confused.

Philip began responding Wednesday to a lot of necessary drugs. First, the immune blocker that is necessary in order to prevent rejection. We then tried the drug but not the veins of the stomach to give, as is usually the allergic reactions are not as strong. Therefore, the probe, because swallowing from Friday / Saturday will probably not be possible. When Philip
it was different, the reaction to the drug in the stomach was much more violent.
red itchy patches all over, heat attacks and while shivering, the circulation mess, headache, and nausea.
an antidote worked relatively quickly, but it was gruesome hours.

Now he gets another immune-blockers which he tolerates well. Just because even the name "Prograf" So for the count. ;-))


But he has an allergic reaction to an antibiotic on Thursday genauo now necessary. Now try it with another agent and an antidote that is administered before, etc. .. The morphine dose was

daily since Wednesday increases, but is not (yet) in the acceptable range, say the sisters. Merhmals day he can give himself a bolus by pushing a button, which is an additional booster thrust. The machine keeps track of how many such bolus but it is limited, and the daily dose and the interval between the additional shares. Nevertheless, responding

Philip several times daily with a violent allergic reaction.
Hot head, red ears, cold fingers and toes, chills, nausea, high temperature, red itchy patches to awful in all parts of the body. We try different creams to relieve the itching. Philip is very brave, but sometimes he is losing patience because the pain too soon to be bad.
Until he notices the nurse or doctor to examine and a cure is complete until the drug works and relieves the reactions in such a process takes around 2-3 hours.
The last few days it was usually in the evening, always go home if I wanted just to clock 20:00.

Phil is very proud of his feeding tube, and sneezing is not many a ghastly thing-tasting drink to sound special. He is also very careful to not break, because he knows that this mithochkommt the probe.

covered with the blood values, the Tromozyten, these are the platelets. Thus it tends to bleed easily. On the skin caused red dots. The mucous membranes
have passed almost completely through Saturday. Flows from the mouth of bloody yellow phlegm.

lie by the few and the food has stopped the bowel to work.
same time pushes the stomach. We try it first with Zäpchen then it is but an inlet. The result is quite bloody. From the mouth of bloody saliva flows. The cheeks are swollen all feeling in the mouth is gone.

In the night from Saturday to Sunday, it happens.
has accumulated blood in the stomach. Blood can not digest the body itself, which collects in the stomach until it passes. At about midnight, then a portion of Ordet and come up with it - clear anyway - the feeding tube.
Thereafter there was an emergency measure a Trombokonzentrat in the veins - they are darurch somewhat increased but still far below normal, is probably still as a yellow blood Ackerman. At dawn, Philipp
has again thrown up some portions of blood.

But you have but the cause of the allergic reaction found. It is probably the morphine. Now he gets a cure but the analgesic effect of morphine is not affected, however, relieve the side effects. This means it is
but only for swallowing, is now stupid without probe with open mouth and throat mucous membranes. Bravely endures but Philipp these torments.

And we hope - get the WBC ;-)) they ensure safety on, and with increasing WBC, it is the body relatively quickly better. There

New gavage it first, because they are not through the open throat mucous membranes can be introduced. So it is now standardized to swallow, which is currently not possible. Even those parents
report on the station, situated a few weeks before us in the schedule that the kids about 2 weeks nothing, absolutely nothing to eat and drink.

This is not serious because the body is supplied with nutrients via the veins, but gefähöich for the intestine. This has nothing to do, and thrives on Bacteria and fungi that want to be busy, and can occur because of the location while silly ideas. This could be potentially hazardous under certain circumstances.

should also Philipp train his lungs. Through the many and are the least physical activity are not supplying the lungs to the recent peaks. This creates the risk of pneumonia. Therefore, the Spiro coach, but in the current state of Philip can not be used. He is much too weak to stand up straight and manages to pee. Now and then he sits up in bed, but that was already with physical training.

difficult situation when you pass neighborhood should do something but physically simply can not. Now we have to wait for the "fresh" WBC, things are more easier again, and hope that in the meantime, nothing bad with the bacteria. Fungi and viruses happens in the body.

You can still talk a long time from a successful transplant. Too many potentially hazardous phases remain to be overcome.

Next comes what is known as GvHD. This is a reaction of the new cells to the new home. Finally, the cells recognize the body of Philip as their own and not attacking him. As a health police they eat everything foreign. This can dissolve the skin, gets confused about the liver and some other organs crazy play. But to do more if the extent is.

Currently we are busy every day to reschedule who is, at what times for which child. Phil can be visited daily from 11:00 clock to go to bed by one of us. Marie-Therese tried it (Monday) morning with the first day of school and needs an afternoon care. In between, many things remain on the track. From shopping budget on food, maybe try to work, an organizational challenge. The communication and coordination is possible largely only through's cell phone, which is virtually impossible to telephone the hospital, due to hygiene measures. (See post from the past Week) In the evening we fall exhausted into bed to sleep but not because the head can not turn off.

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Day Two: Thursday 4 Sept. 2008

Today I received two times a stomach tube.

Because I'm responding to an important drug for the prevention of GvHD Abstossungseffektes allergic and I need the drug therefore can not be administered through the veins but only by swallowing.

Swallowing will work but in the next few days getting worse because dissolve the mucous membranes. Therefore I have agreed to morning call for a doctor that I, a probe is placed. The great advantage is that I no longer drink the juice the Moro, but I can explore yourself.

the afternoon I was just so angry, and when passing the probe came out with.

After 10 minutes recovery period have set myself the sisters very stress-free, a new probe. marvel

The nurses and doctors how great I did it. For 6 years they have seen no one, which the probe can be positioned so unkomliziert.

The nurses bicker Jende day in the morning about who should care for me.

do all beautiful to me ;-))

feeling.