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:-) Day 56

It's slowly uphill

Since Saturday, Philipp has been the starting. By day clock from about 10:00 to about 21:00 clock.
It's much better than him in recent weeks, with output.
He starts slowly but kontiunierlich food.
was on Friday still si looks certain that he gets a stomach tube on Tuesday, since it is no longer an issue today. First, while Philipp small, solid food is increasing, and these reserves as well.
The weight falls continuously down further. Therefore, he must also
until further in the night to the hospital to get extra energy into the veins. Over the weekend he has lost over 2 kg.

is coming on Friday even the day 60 The day of the second bone marrow aspiration after the transplant. This is another major milestone on the path of healing, with very detailed investigator researches.

We are once again amazed at how quickly time passes, in 40 days is approaching the day 100, there could be - if all goes well until then - get out of the venous catheter again. And from then Philip could again start slowly in the "normal life" to increase share.
The current state makes us all courage and hope. Philipp really good mood, making jokes and enjoys time at home.
The appetite is growing every day a little bit, and so gradually normalize things.

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:-((( first, there is another, secondly, as you might think .....

It was only a short visit to Rabbit.
But one night at home and take a shower at home, has enjoyed Philip.

On Tuesday morning he has several times but then have to break so violently that he is voluntarily come back to the hospital.

Now it is watered again through the veins and also supplied with nutrients, as he has in recent weeks, quite lost weight.
The mood is understandably very disturbed.

Today Thursday he was with the rescue in a remote diagnostic center with CT.
Physically, he feels much better already a bit better, but still very muddy and exhausted.

Currently there are no predictions could be thought of when to go back to the home.
would be first important to Philip begins with the food, otherwise he will get next week a feeding tube directly into his stomach.

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:-)) Day 48, Monday 20.Oct.2008

It's done!

Philip was today officially released by the station 1A. :-)
rightly so, we still can not quite grasp.
allowed after exactly 9 weeks today Philipp sleep for the first time back at home.

After on Tuesday because of fever was no exit, and Philip was really frustrated, he has been granted on Wednesday despite fever output. He is just at home but better, and he tries to drink more at home than in hospital. It has effects on positive's mind and promotes healing when you are at home - quite unconsciously.
has just arrived at home but he really just asleep, until it again in the evening to the hospital had. On Thursday he went
but zune shirt better. He was in a good and has been drinking enough. We did but not much hope to be released, because we have now been disappointed several times.
It was uphill but now every day. The blood values entire constitution, in short, felt better.
But because of the fever of Tuesday now an antibiotic was administered, the next possible Entlassungetermin the Monday discussion.

wanted Sunday night Phil absolutely not the hospital. It cost us a lot of persuasion.

On Monday morning, then the joyful message of dismissal. All on-duty nurses and physicians have bye. It was exciting to put anything and nothing to forget. It collects a lot of 2.5 within months.

Philip was so excited that he has begun to break in the hospital.
Also on the way home, he has passed several times. The we have known now for no longer than a week.
Although he is now very weak and tired, the circuit may today not as true in the evening, the temperature rises just below the temperature limit.
But we are all overjoyed.

Philip enjoys after 9 weeks, the first night at home. He can hardly sleep with excitement, although he is very tired and dizzy. On the way from the living room to the toilet it is sometimes black before my eyes. He has short rest because of over-exertion. Does not now, we live in a huge loft, it's only a 90m ² apartment, Phil brings to his physical limits.

is now training and practice it, fresh air and slow movement increases. And do not forget to drink at least 2.5 liters. Today he managed to barely half.

On Wednesday there is a check-up in SZT-ambulance. First 2 more times a week, but hopefully only 1x per week, a short visit to the hospital. We can not wait.

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:-( (Tuesday, 10/14/2008

remains unplanned

The weekend was great. Phil has enjoyed the time at home, and increased the amount of fluids daily.
was on Sunday reached the magical 2-liter limit. ;-))

the evening when you check in the hospital there was renewed hope that he, on Monday, when he drink so much then allowed to sleep on Tuesday at home.

The anticipation was great, but as you can imagine it already was obviously different.

added Am Monatag afternoon Philip suddenly after a nausea attack beyond 38 degrees fever. So earlier than planned return to the hospital. In the evening the fever was gone.
It remains the hope for release on Tuesday.

But on Tuesday it is also different.
Philipp out at an early fever and may therefore not today.
So no output, and the release also brings back the auserhalb already so palpable been closer.

Philip is desperate and may finally be healthy again and sleep at home. I really understand it, since he only sleeps for 8 weeks in hospital, although the last 10 days was the day "starting" but it costs an enormous overcome in the evening (optional) go to the hospital. And at first, is also the starting day are deleted.

We practice patience, and try as little as possible to plan in advance, because it anyway every day standoff. :-(

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Day 37, Thursday, 10/09/2008

First it is different, as you think.
But first, the events this week in order.

This past weekend we all enjoyed. We have picked up Phil at 10:00 clock in the morning, and he first had to be back at 20:00 clock in the hospital.
It was super great. We played cards, are lurking just relaxing and have enjoyed the day. Philip takes 2-3 hours to lunch for his beauty sleep. The rest of the time he is fit and funny on it. On Sunday we learned
this situation, the whole week will be above TOR. ;-)
The first day in the evening but Philip is glad to get back to the hospital. Since the day he infusions without enough liquid increases, he feels the lack of fluid in the evening.
As of Tuesday evening, he might understandably not even the hospital.


Since the whole-body irradiation, however, several internal organs were damaged, need for regeneration of the body and are flushed properly, especially of the proposed mid-passion kidneys. Therefore, Philipp drink at least 2 liters a day.
does not sound much but is very beschwehrlich if you have absolutely no appetite and the taste buds are all confused. The production of saliva works well not really. Everything tastes different somehow, some grisly, some things differently than you have it in blush, some burning in the mouth, much tastes like nothing.


On Wednesday we had a termination (dismissal) Interview with the ärtzlichen team. If Philip to Friday drinks at least 2 liters, then he can sleep at home, that is, Dates of release. :-))
Big goals, because Philip provides just a brief liter, and of which he breaks out again a part, which really should not be included.

The conversation is uniformly very positive. It has grown all the new stem cells, and are developing very well.
The "new" blood production works very well. Of his total blood content in 2100 new cells, only 50 of his old blood cells are present. This is really great and glittering internationally very successful.
Additionally, only in Vienna, also with a very specific measurement compared with just these 50 white blood cells with the same types of new white blood cells. This is now at the various Chromosomes visible. In this particular measurement are still 70% old cells that want to exterminate the doctors now have to really go on the safe side. The immune-blockers is reduced to attenuate the nine cells to be aggressive and not zusehr. This could also result in a stronger GvHD.

On Wednesday we went to for a teacher, physio and Arztgespröch at 15:00 clock home, but instead were allowed to stay until 21:00 clock.
Philip was very tired and has slept through most of the starting time at home.

Although he at home with the lift in front of the apartment door to the garage to the car drives, and in after 15 minutes steps Hospital's, it is mostly from the transport so exhausted that he has to throw up.

On Wednesday evening he is quite at home played out and a little body temperature rises just above 38th

On Thursday, he sleeps in the hospital longer, so the teacher can only later to him. Before starting he would still need to cardiac echo and ECG because because of the great listlessness may suspect something at heart and ensure that everything is ok.

shows the morning then the real reason for the fatigue, he has diarrhea. This could now be GvHD, or a virus, or something else because he spent recent days against the constipation swallow a lot of stuff had to Darmbeschleunigendes. However, the fever would rather point to a virus, but because of the immune blocker was reduced (70% to eradicate the old WBC), it could be GVHD.

So today no exit, back to bed and to the infusion docked for irrigation.
And it looks like even on Friday, no home sleeper.

The good news for the day, however, that in the next specific measure last Monday, only 40% old WBC were present. The trend fits. ;-)
Even today's cardiac examination revealed a unaffälliges result.

On Thursday evening Philip was again significantly better mood than even for lunch. He had no abdominal pain and felt better. In the evening, he stows away even with large appetite, a small piece of fish and two Petersillkartoffel. Very highly spiced with fresh herbs and almost salty, but it it tasted good.

Hopefully it is now a small step forward again and there is now nothing in between, then it's the beginning of next week for a long time to go home.
1x weekly checks are first provided in the outpatient clinic.
On day 60 another bone marrow biopsy and then probably only every 2 weeks for control.
And on day 100, there is then only the latest of bone marrow and if by then everything will fit in the course of which the venous catheter back out. That would be sometime in mid-December, so for Christmas at home without the hassle Schläuchelwerk at the breast. ;-) Those are fine goals, right? And Phil could then schedule the time to start again from a "normal" life in the society to go back to school, go back normally to the cinema or in any restaurant. But until he is really fully fit again, everything can and should be eating it but still take 6-12 months.

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:-))))))) ) Day 31: Friday, 03/10/2008

Hurraaaaa, it goes home
Phil gets out tomorrow and on Sunday.
Things change very quickly here in Spiatal, and today is drann positve side. We are pleased and thrilled.

Saturday and Sunday mornings at 20:00 and only home only to sleep clock back to the hospital.

The cold is getting better, the WBC increased again and now (18:00 clock), he gets just one Erykonzentrat that he is fit for tomorrow's output.

We, parents have now got a basic education, as we have what we observe at home. Philip already knows the basic hygiene rules and measures best.

people, it's a big step. We're a little excited. But the team at St. Anna gives us the necessary security. Philip, while still Immunsupremiert but as far as stable, and it should be a starting to enjoy. So stay cool, and make no major Sogen.
may now be his immune system get used to the family, without masks, we will no longer recognize.

goes step by step Philipp back towards "normal life". :-))))

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:-I Day 29 Wednesday, 10/01/2008

Things keep moving.

In the course of anesthesia for the biopsy was Philip again set a feeding tube because he drinks and eats too little.
But already in the awakening he has again rausgesp ...

We were still cautious on Tuesday made the prospect that Philip can maybe go home for the weekend, then The situation changed again today.

He now has a cold. Not all bad, but still. Thus, the probe would now be a hindrance. Because he was still far too little and drink every day he continues to lose weight must be irrigated through the veins.

Now the cold may not propagate, otherwise there antibiotics, and not only up the nose flows may be placed the probe and the gastro-intestinal tract can be reactivated really. Currently the case is something.

because all the WBC are now needed for the virus, the blood comes back through each image a bit. WBC and HB fall, Phil is tired and exhausted, but should move, because he is now losing weight every day and therefore muscle mass. And he has but do not fancy.

So we hope that he recovers from the Wochenede, then there may be a few hours of starting.
With the dismissal we expect from today's perspective until the end of next week.