Hurraaaaaa, again made a big step.
was finally removed today the venous catheter. Was not that easy but that Way to this place.
The last few weeks in fast motion:
Before There Were Two weeks back a share. Philip must again (almost) everything. So even eat sushi and fresh sliced sausage and kebabs, etc.. Of course, everything should still be fresh, but also nuts and poppy seeds are allowed again. Ahhhh finally allowed to eat everything again. Wonderful.
is also usually out of hang gliding, motorcycling and public. Baths again everything is permitted. Full great. Also, U-train travel is allowed for 2 weeks. Sounds strange, but after such a long abstinence something special.
Great care needs to the sun. His immune system and its protective mechanisms correspond to day 180 that of a 6 month old baby. So no sun or strong sun protection. He is now getting all the vaccinations again, like a newborn for or against all childhood diseases, etc.. The first dose was there in late January, the second next week.
So, for today and so was the planned surgery date, coinciding with the day 180 bone marrow biopsy to check out is also equal to the catheter. First, we were ordered
clock for 9:00, but received a call yesterday and should have come earlier.
Then the last blood sample from the catheter, but the same tidy.
14 tubes for all possible and impossible tests.
Right after moving into a room on the ward 3B, the playful surgical gown and wait briefly. The prognosis of a doctor and nurse that Philip soon turn comes, and go about 1.5 to 2 hours back home can. We look forward to.
Then the sobering message that the ESR does not fit. The reason may be the blood of catheters, so Venflon translated - iiiihhhh after 11 months back, a needle - and wait another 1 hour. Nix to quickly return home.
There have, however, all efforts so that no additional sober waiting all too long. Thanks to the team, from doctor lab. :-) At 10:30
fits clock finally the release, blood counts, into the operating room.
After about 45 minutes, Philip back in the room, still has a bit of dozing. The "correct" him anesthesia was much more pleasant than the usual short-sedation. He also has recovered a lot faster. Already at 12:30, he was fully fit again, but before he could go home, he still had some body functions to the test. eat clear anyway, then a little bit - -
So first a bit of drinking, without break without breaking, then pee. Only then another doctor came to the final inspection and then finally out to about 14:30 clock from the hospital.
now in the evening a bit of pulling and a bit of pain, but do not hang Katheterpommeln everything from the chest. Only one patch and take a shower in 1 week and swim back to normal. After nearly 11 months of almost unimaginable.
We have now learned that such a catheter but lasts long, but often does after a few months, problems, or something ignites. It is not uncommon for it to be renewed during therapy must be 1 or 2 times. Whew
because we were lucky, Philip had him since April 2008 without problems.
So much for medical health, all right. On 10 March - so coincidentally the day exactly 12 months after diagnosis - follow the usual day 180 investigations. We expect a day of action in the hospital, the EEG, the ECG, echo in my heart, for MRD, and so on. We have ash on us.
Since mid-January, Philip tried very hard to regularly attend school. With the semester break, the home schooling has been reduced to almost zero.
It makes it fun and pursue it in the "normal" school day also good. The contact to the classroom community is never really torn, so there was no Proleme with the re-integration.
However, he charged the school work stress. Philippe is technically good, but he always gets a day before a school work so wicked Bausch Merzen associated with diarrhea, that any activity is impossible. Although we all try to print out including Philip increase, does not the head or the body really with. As we have learned today is not unusual for such a year of treatment. So we will switch back to a passage, perhaps even insert a weekday with home schooling and curb the ambition of all of us a bit.
Na is yes and yes then there is only 1 month until the family to St. Catherine's Rehabilitation height. The anticipation builds with each day. This is probably because our batteries are empty and we are increasingly looking for relaxation.
for us parents have the reserves used up and consumed energy.
now there is already a long diary entry but we have to report something important. February is the month of birthdays for us. First, Marie-Therese celebrated her thirteenth birthday, it was Mama drann, they can turn the old business, now and as they want, the numbers produce always the same number would not reveal more.
And this week Tuesday, had his 15th Philipp. The gruesome 14th Age is over. Philip had but even stated that it's actually gone by quickly. We had just the mega-birthday party in February 2008 and again a year. This time, however, we are all glad it is over.
So now I've had enough written
passes until the next time
All the best Mark
