.... 1 year ago yesterday we received the devastating diagnosis .....
.... after 85 diary entries, countless hours in the hospital, 1000den swallowed pills,
yesterday was the big day 180 investigation.
6 months after transplantation were routinely carried out lots of tests. The findings on bone marrow biopsy 2 weeks ago were discussed and are promising. Nearly 100% donor cells, so virtually no "old" blood cells more. Although some special blood cells develop a little slow, but that is not worrying.
Philip must now only because of infections still more cautious, though his body is already 15 years old, but it corresponds to the sensitivity and the immune system just that of a 6 month old baby. The immune system will catch up but hopefully in a high speed in the next 12 months and much to protect him in 2010 age-appropriate.
Now Philip has not tolerate a variety of fresh fruits, do not protect in the sun, it is also against excessive heat, because the whole-body irradiation of last September is now in the heat, the risk of brain swelling.
But those are only minor restrictions, compared to what lies behind us.
By now increasingly rare hospital visits, we note how quickly the unpleasant things in mind. On many we can not errinnern. Even went for walks in the Spiatl us countless times, we had yesterday and thinking about how we get from A to B.
also again as a practical protection mechanism of the body to forget unpleasant quickly. I even happens that this time is faster with forgetting than 8 years ago during the initial disease. Many of the extreme hygiene measures, I would describe today is not more even though we have used it for several weeks several times a day.
As each day brings the family closer to rehab. On 1 April is so far, then it goes for 4 weeks for the whole family to rehab at St. Catherine's height. We can not have almost merh finally expect the batteries to recharge, build stamina and get fit again.
Until then, however, still a lot to do. A check-up for the Kid's in our Hausärtzin in order to ensure that we bring any contagious diseases.
effective vaccination for some childhood diseases for Philipp end of March, as written, must make up for all children Philipp vaccinations.
And a routine check-up at St. Anna is also the end of March in the program.
On the very day after 12 months dissolves at me kind of a heavy load. Phil has managed to therapy.
an interesting feeling in my stomach, if now fly the idea in recent months by the head and mingle with the emotions 12 months ago.
come true yet some control tests, and possibly also one or two other long-term side effects, but the main disease, leukemia, is defeated. The doctors were all diagnoses and successful change of direction in therapy. Philip was brave and grown by the situation, and we as parents have become strong. Somehow you proud of something you have not chosen, and the one actually not at all proud want to be, because there were many bad things but that had to do and we learn. At the same time I am
grateful for the sensational team at St. Anna, even if sometimes the communication is between the different areas not quite as smooth, which is certainly partly due to the tense situation. There were all really great, the Ă„rtzInnen, the nurses and orderlies, the psychosocial team, to cleaning and the transport of patients, thanks to you all.
Thanks also to all who have so often thought to me and fingers crossed.
Thanks to our superiors, who have made very generous to our situation into consideration. Thanks to our
Family
Thanks to the team of children with cancer and
Thanks to the friends I have now not given separately.
Without this uncanny cohesion and this "backing" we could not have done.
makes meantime Philip enormous progress in the IT sector. Today he has
fifth the seven tests on the way to the ICDL - Computer Driving stored. On Tuesday, 31.3. just before the departure to St. Catherine's height, he is still invited to a ceremony in the town hall.
Sensational, what Phil has done next to all the medical unpleasant things in the past 12 months.
And above all the humor he has survived. This gives us all strength and courage.
Unlike many young people he is fully motivated gone by the time of treatment, always keep the goal in mind, in a few months, I am healthy. And it is confirmed when you look at the objectives formulated positive picturing in my head, then they can later become a reality.
do hope that these lines all the courage, a transplant have yet to come or go a different hard way.
It's all create when we firmly believe.
LG
Markus
